I’ve been chewing and nipping away at “The Forgetting: Alzheimer’s:
Portrait of an Epidemic,” by David Shenk.
He writes well, and this book doesn’t read at all like a research
paper. Despite my own forgetting, I am assimilating
and enjoying the stories he tells.
When Paul Hawkins and I arrived in LA for his classes at Art Center School,
one of the first places we lived was in this old four unit apartment
building. We were upstairs, and
downstairs were Peter and Ellie. We had
seen them last month at one of her art shows.
Yesterday, Ellie came to visit, and she brought us very sad news. Peter has Alzheimer’s.
She is powerful woman with four kids and amazing talents. I had not only been a bit afraid of her over
the years, but I’ve always felt less than.
She told us typical stories of caretaker burnout, and her sadness
created equality in me for the first time.
She can’t work, paint, travel, and give workshops while caring for
Peter. Like my friend Bobbie, her life
is her painting. Ellie’s son, Charlie,
was willing to take over caring for Peter while Ellie learned the in’s and out’s
of the family business and painted. She
told how with her tax accountant’s help, she was able to take up the
bookkeeping of their corporation for the first time. Every story had its first step triggered by
Peter’s confusions.
I kept thinking, what would have happened to Duck if we had not been there
for him. If in a few years the disease will double,
then double again. What will happen then to all the Ducks in the world?
……………………………………………………………………………………………………………………………….
- Himself: My hero all day.
- Myself: Breakfast with Margot and Zoe yesterday. The long visit with Ellie. I could see through her eyes how much I have grown and how wonderful G is. Dinner and a meeting.
- Reading: The Forgetting
- Gratitude’s: George and the cooler nights.
It is a hideous disease that robs us of our memories and then, finally, ourselves.
ReplyDeleteThat dreaded disease strikes fear in the hearts of manyof us!
ReplyDeleteI have three friends all of have lost their spouse to some type of senility. One used the word Alzheimer's. We all fear losing ourselves. I also fear being tested as a caregiver. This is not a fun journey without friends.
ReplyDeleteMy cousin just passed from Alzheimers and while it was brutal for her, it was doubly so for her husband who would not commit her. Care giving is brutal. We need a cure and pronto.
ReplyDeleteI do not want to know any more who suffer. But, I shall.
ReplyDeleteIt was a good visit. I think she needed someone to talk to.
ReplyDeleteKeeping my mind is the one thing I most want as I age and hope others are able to do the same.
ReplyDeleteIt makes life hard. It scares me.
ReplyDelete